It has been too long!

Hi to all my friends out there. It has been awhile since I last posted and I am sorry for that. I plan to get into the swing of things soon. I am doing good and still waiting for a transplant. :)

Canadian Guardian Angel..

I have one. I really do. I don't even know her her by any other name but yrhelper.

Yrhelper is holding a tweetparty for me. It was kicked off today, my 38th birthday! She is holding a contest with prizes to be won. You must go to her blog . All her proceeds that she earns through Sept. 4, 2009 through her online shops will go to my NTAF account. (National Transplant Assistance Fund) She is also raising awareness for a possible living kidney donor for me.

She had seen a request made by my Mother-n-law Kathleen on her active rain blog . From what I understand is that she has a sister that has an autoimmune disease that was attacking her vital organs, but were able to stop it in time with medicine. Unfortunately, that is not my case and part of the reason why I blog about my disease. If I can help just one person to not get to the point that I am at...it is soooooo worth doing this blog!!

Yrhelper is on twitter...so follow her! Her blog is Rewards4Canada . She has great coupons and money saving ideas too.

I am asking you to reblog her post. Follow her on twitter and return her tweets for all to see. I can't believe my guardian angel is doing this. Again, I don't even know her name.

Amazing, huh?

I really don't know what else to say...I am speechless. (and for those who know me, that is hard to believe).

One thing I can say is....


THANK YOU Yrhelper!!


I also want to thank anyone who has helped me. I really appreciate it.

Home again...home again...jiggety JIG!

I have made it home after 3 weeks in the hospital. I am tired and a bit overwhelmed at what has happened the past month....

I guess I am not as strong as I thought I was. It amazes me how you think you are chugging along just fine and then something bites you in the buttocks.

In a way it is scary, but I made it!!!

It is thought that I had a staph infection, but to be truthful I think it had something to do with Sjogrens. The Docs words were "WE THINK YOU HAD A STAPH INFECTION".

I really appreciate all the prayers and thoughts being sent my way. I will eventually get back to posting soon when my energy levels go up a bit more.

I am exhausted and just need to rest a bit.

Take Care!

hospital update

Yes.....it is going on 2+ weeks in the hospital. The DVT became infected and needed to come out. I had surgery on the 15th. It is healing slowly.

My hemoglobin levels were 8.1 and I received a blood infusion. My hemoglobin is now in the mis 9's. I am still very tired.

I will get back on the posting soon when I feel like it. Thanks.
Vicky

who am i ???

i have been here for 10 days.

i know all the nurses, doctors, and vampires on the first name basis.

i am going to get a blood infusion.

My morphine pump is my best friend.

Just an Update

Well, still waiting to see if someone else will be tested at MUSC. I feel like I am on hold once again...playing the waiting game. I have been tired too, my Doc allowed me to get my procrit injection 6 days early. That helped.

I have an eye doctor appointment on Thursday. I have been having blurred and double vision lately. I think it happens more when my eyes are dry and tired. I think prescription eyedrops will be called for. I also need new glasses and definitely something for the sun!

I think I have said "I Think" a bunch of times in this post....enough about me!

What Sjogrens means to me....letter by letter

S Scary at times
J Joint & muscle aches
O Other people out there...I am not alone
G Good days....& not so good days
R Renal failure
E Eyes feel like sand is always in them
N NOT going to beat me
S Stiffness through whole body

What does it mean to you?